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The limits of health care: the Schiavo case
Page 2

Three more readers comment on the death of Terri Schiavo
[4-4-05]

Paul R. White, of Bakerstown, PA, agrees with Paster Jim Tweedie’s view that a feeding tube is not a life-support device, and express skepticism about Michael Schiavo’s statement about his wife’s not wanting life-support care.

Penny Osby, of Council Bluffs, IA, speaks out of her experience as a nursing assistance in an extended care facility. Her experience leads her to say of Terri, "she was not living, she was only existing, and that is no life."

And Earl H. Tilford, Jr., PhD, Professor of History at Grove City College , suggests that "if being verbally incoherent and dependent on others for nourishment are reasons for starving people to death, we might easily rid ourselves of a significant portion of the population who cannot be easily understood either because they don't speak English or they speak a form of it incomprehensible to the majority of Americans."

From Paul R. White

Congratulations to Pastor Jim Tweedie for positing logical, rational words (3/29/05) with which the overwhelming majority of church-going folks concur. Sometimes, to further our agendas, we don't like to deal in the minutia. I suspect that many don't want to admit that a feeding tube is NOT a life support device. Thanks, Pastor Tweedie, for pointing this out. His compelling, faith-based piece is a must read for those who somehow justified Terri's murder. Best of all, for those of you who are progressive, secular, left-leaning or liberal, Pastor Tweedie doesn't even go to conservative arguments such as Michael S. had plenty of reasons not to tell the truth about what Terri told him (we all know that most kids in their early 20s talk about their end-of-life desires regarding feeding tubes as opposed to life support devices). Right, and the Pittsburgh Purates are going to win the World Series this year.

Thank you Pastor Tweedie for the sanity you offered to the Witherspooners!!

Paul R. White
First Presbyterian Church of Bakerstown
Bakerstown, PA

 

From Penny Osby

I work in a extended care facility and we have many of our residents who are on a internal feeding tube, and many of them have no idea what is going on around them. They are no longer the persons they were. They basically are just existing because of the feeding tube and feeding system, as Terri was, and I believe Michael did the most humane thing he could do for his wife and love of his life.

This case has made me make a effort to ask my family what their wishes are if this situation would ever come up. Personally I hope my fiancé and family have the confidence to do what Michael did for Terri; she was not living, she was only existing, and that is no life. If you do not know who you are, who your family and friends are, where you are, what is going on around you, do you really feel that is a quality life? Think about it.

I want to take this opportunity to extend my condolences to Michael and Terri's family. I know this is a very hard time for you, and I know this does not help much, but it will get easier. Five years ago I had to shut the machines off on my mom and it was hard, and sometimes I wonder if it is what she would have wanted. She mentioned that she did not want to be kept alive artificially but it was hard and I have to believe she is in a better place now.

Don't give up and it will get easier.

Penny Osby
Council Bluffs, Ia
She adds: "I am a certified nursing assistant as well as a certified medication aide in a extended care facility in Omaha, NE."

 

From Earl H. Tilford

In 1561, Ivan the IV, (the Terrible), Tsar and Autocrat of all the Russias, locked Philip, the Metropolitan of Moscow, in a dungeon where he was starved to death for advising the tsar to mend his murderous ways. One might argue this was a comparatively humane punishment for the time, since Ivan regularly had innocent people impaled, burned, roasted, drowned, chopped up, beheaded or disemboweled…or various combinations thereof. One could make the case that this was not murder, but punishment for political insubordination. In any event, starving a difficult subordinate who insults the Autocrat is a far cry from starving an innocent woman who could not communicate and depended on others for food and drink. If being verbally incoherent and dependent on others for nourishment are reasons for starving people to death, we might easily rid ourselves of a significant portion of the population who cannot be easily understood either because they don't speak English or they speak a form of it incomprehensible to the majority of Americans. Mexicans, inner-city Blacks and most Alabamians leap immediately to mind! Hey! We can make the law to facilitate this! Slavery, the Holocaust, segregation were all legitimized in law.

Earl H. Tilford, Jr., PhD
Professor of History
Grove City College

 

We recently received a note urging us to provide some serious moral and theological reflection on the tragic case of Terri Schiavo.

Read the note >>

Here are more reflections, first from Witherspoon Issues Analyst Gene TeSelle, then a press release from Americans United, and finally an analysis of media coverage, by the Columbia Journalism Review.   [3-23-05]

And of course, We welcome your comments!
Just send a note to be shared here.

Resources for end-of-life issues

As the impending end of Terri Schiavo's life moves many people to think about similar situations that might one day face them, we offer some listings of helpful resources for dealing with end-of-life issues, living wills, and more.   [3-25-05]

Ten Native Americans die, and there is silence

[a little comment from your WebWeaver, posted 3-25-05]

As residents of Minnesota, we may feel a little closer to the killings and suicide in Red Lake, just a couple hundred miles north of the Twin Cities.  And we do wonder about a sense of proportion.  Ten people -- men, women, and teen-agers -- are dead, and a tightly connected Native American community is deeply affected.  And from the White House, not a word.  For one white woman, slowly dying in Florida after years of unconsciousness, the White House and Congress have tried to move heaven and earth -- or at least the state and federal courts, including even the Supremes -- to extend the life of Terri Schiavo's body a bit longer.  Why?

Clyde Bellecourt, a Chippewa Indian who is the founder and national director of the American Indian Movement here in the Twin Cities, is quoted in a Washington Post article as commenting:  "From all over the world we are getting letters of condolence, the Red Cross has come, but the so-called Great White Father in Washington hasn't said or done a thing.   When people's children are murdered and others are in the hospital hanging on to life, he should be the first one to offer his condolences. . . . If this was a white community, I don't think he'd have any problem doing that."

Reflections on the Terry Schiavo Controversy

by Gene TeSelle, Witherspoon Issues Analyst

One has many thoughts in the midst of a difficult decision like this. Please excuse me for being attracted to the political overtones. I am certainly not alone in this.

Commentators have been noting the curious contradictions between the statements made by conservatives in the Terri Schiavo case and their general attitude toward persons in a crisis situation.

The disconnect is seen most clearly in President George W. Bush, who urged in this case that we "err on the side of life" but was unwilling to do that in cases ranging from Iraq to appeals from prisoners on death row. And it was he who, as Governor of Texas in 1999, signed the Futile Care Law that gives health care providers the right to end life, even against the will of family members, if it is hopeless. They are more likely to take this course after financial resources have run out. His administration has been accustomed to placing monetary value on the human lives that might be affected by polluting power plants and usually deciding that the sacrifice is worth it.

Terry Schiavo, furthermore, has been kept alive with the help of Medicaid, funding for which the President and the Republicans in Congress want to cut, and a million-dollar award from a medical malpractice suit, exactly the kind of thing they would like to do away with. They have just changed federal bankruptcy law, furthermore, to make it more difficult for families hit by medical costs such as this to get out from under the debt.

The public debate swings, or perhaps lurches, around two different centers of gravity, "sanctity of life" and "quality of life." The so-called right-to-life movement has focused its attention on the beginning and the end of life. This is an admirable thing to do. But it has given little consideration to what lies in between. The alternative movement also speaks the language of rights, but with a concern for what lies between birth and death, and usually with a sense that both birth and death are complex and filled with mystery. Health care providers often comment on the difficulty of knowing when life begins and ends.

Progressive Catholic bishops have advocated holding these together; Cardinal Joseph Bernardin of Chicago spoke of them as a "seamless robe." But in the zero-sum game of partisan politics and the shaping of budgets, one side or the other gets shorted.

The psychology and ethics of the conservative position is curious. It uses the language of absolute rights in speaking about birth and death. But it typically speaks of "personal responsibility" for everything in between. A girl who is raped is often expected to live with the consequences, or at most is required to get parental consent and listen to a lecture about fetal pain; the family of severely ill children or adults is expected to provide both personal care and financial support even as public resources are being cut.

Nurses who have seen these cases at first hand point out the exercise of raw power. The state, or a physician, or a hospital often says, in effect, "Your life AND your money." The family is denied the right to make decisions; the body of the loved one is held hostage and subjected to heroic medical efforts; and in the end they are responsible for paying the bill. It seems to become one more way to exert power and increase dependency on those who rule.

There must be better ways to proceed in such cases. Even when there is a desire to impose absolute restrictions there ought to be a willingness to bear the emotional and financial costs. Otherwise the right-to-life program becomes not only an unfunded but a de-funding mandate, driving families into debt, bankruptcy, and despair. A better ethics and politics is one that takes a positive interest in nurturing human life and its fulfillment (often called "flourishing" in recent literature). It seems far less hypocritical to place the emphasis on the latter, and to be cautious about imposing one's will on other people who face decisions that have already been imposed upon them against their will.

The Good Samaritan, after all, not only saved a life but offered to pay whatever it took.  Our attitude toward money tells a lot about our values.

Americans United blasts congressional leaders' promise to push religious right agenda

In closed-door briefings, Frist and DeLay cement ties with religious right on Schiavo case, judges, abortion, marriage, church politicking, ethics complaints

[A press release from Americans United, dated March 23, 2005.]

Top congressional leaders have promised to push the Religious Right agenda on judicial nominations, church politicking, abortion, marriage and the Terri Schiavo case, according to Americans United for Separation of Church and State.

Americans United today released audiotapes of closed-door addresses by Senate Majority Leader Bill Frist and House Majority Leader Tom DeLay to a Family Research Council (FRC) gathering March 17-18 at Washington, D.C.'s Willard Hotel. The pair talked about a range of political issues, using the Schiavo case as a springboard.

"Religious Right leaders are determined to run all of our lives, from the moment of conception through the end of life," said the Rev. Barry W. Lynn, Americans United executive director. "And top congressional leaders are conspiring behind closed doors in Washington to help them do it. It's appalling.

"Frist and DeLay have wrapped sanctimonious language around political posturing," said Lynn. "They are using Mrs. Schiavo's personal tragedy in Florida to burnish their credentials with an increasingly powerful component of the Republican Party. It's a sad, cynical political ploy."

Mrs. Schiavo, a Florida woman, has been in a persistent vegetative state for 15 years. Her husband, Michael Schiavo, has fought a long legal battle to remove her feeding tube. Religious Right forces and their allies in Congress and Florida government have repeatedly tried to intervene in the situation, despite medical advice and court decisions that support Mr. Schiavo.

During the FRC meeting, Senate Majority Leader Bill Frist (R-Tenn.) and House Majority Leader Tom DeLay (R-Texas) assured attendees that they would do what it takes to keep Schiavo connected to a feeding tube and also would exert great power to push a whole host of issues central to the Religious Right's agenda.

DeLay urged the gathering to contact lawmakers in both chambers to support legislation that would allow churches to become much more involved in partisan politicking. The Texas Republican blasted current federal tax law, which bars both secular and religious nonprofit groups from endorsing political candidates.

"It forces Christians back into the church and that's what is going on," DeLay claimed. "That's not what Christ asked us to do. We have to fight back."

Beyond swearing allegiance to the Religious Right's agenda, DeLay, who has faced increased attention for alleged ethics violations, also bemoaned "personal attacks" against him and other conservative leaders and said the Schiavo case would highlight those attacks.

"One thing that God has brought to us is Terri Schiavo, to help elevate the visibility of what is going on in America," DeLay told the crowd.

"This is exactly the issue that is going on in America, of attacks against the conservative movement, against me and against many others," DeLay said. He
complained that "the other side" was leading the attack, with a goal "to defeat the conservative movement."

According to DeLay, a "whole syndicate" of "do-gooder" forces are arrayed against him in "a huge nationwide concerted effort to destroy everything we believe in."

FRC President Tony Perkins assured DeLay of the group's support and asked audience members to contact Republican lawmakers and demand that they back the House majority leader.

Americans United's Lynn said, "It is dishonorable for Rep. DeLay to use the Schiavo case and cloak himself in Christian piety in order to evade accountability on ethics complaints."

Frist also told the FRC attendees that he was dedicated to issues dear to their hearts.

"You stand up for our families, our children, you never back down," Frist told the gathering via speakerphone. "That's why we are winning these larger battles today. Together we are leading our nation forward. We have a president, a House of Representatives, a Senate that shares our values and the American people are on our side.

"In this Congress we are going to continue to work on the issues that are important to you, to me and above all, America's future," Frist continued.

Those issues include, Frist maintained, the confirmation of "good judges," protecting the "sanctity of marriage" and protecting "the unborn." He said, "I'm also committed to ending the [Senate Democratic] minority's filibuster [on judges] and restoring this 220 years or more of Senate tradition and history."

Frist was particularly adamant about fighting for a Federal Marriage Amendment, saying that, "We will take action to preserve and protect and defend the sanctity of marriage between a man and a woman."

Americans United's Lynn said the comments by DeLay and Frist prove that Congress is beholden to the Religious Right's narrow vision for America.

"I find it appalling that top leaders of Congress are using the Schiavo tragedy to nurture their Religious Right base," Lynn said. "I am confident that the American people do not want their personal lives subjected to interference from Congress and their Religious Right allies."

 

Americans United is a religious liberty watchdog group based in Washington, D.C. Founded in 1947, the organization educates Americans about the importance of church-state separation in safeguarding religious freedom.

 

No life support for you

Posted on March 23, 2005, Printed on March 23, 2005

The Columbia Journalism Review daily on-line version takes a critical look at media coverage of the Terri Schiavo case.

They note that "most everyone in Washington ... believes that grandstanding politicians are using the issue for political gain. But should that information be included in every story, or should news consumers be allowed to come to their own conclusions?"

The article also takes note of the case of Sun Hudson, a six-month old boy who died last Thursday after a Texas hospital removed his feeding tube, despite his mother's pleas. His mother could not pay for continued life support treatment, and so, because further treatment was futile, it was stopped, under the Texas Futile Care Law, which was signed into law by then-governor George W. Bush.

Read the full article on the Columbia Journalism Review web site, or on AlterNet

A pastor writes to say that Schiavo’s situation is not like those on true life support

Responding to our note about an article in the Columbia Journalism Review, the Rev. Jim Tweedie that the two patients mentioned in the article clearly could not have survived without life support, while Terri Schiavo has needed only food and fluid. He says this makes a difference that should be respected.    [3-29-05]


Greetings from a PCUSA pastor. I enjoyed finding some links to articles on matters that I otherwise might not have read or even known about. I would like to comment on the Columbia Journalism Review article which compared a Texas law that allowed the discontinuance of life support (against family wishes) for Sun Hudson and Spiro Nikolouzos (a statute signed into law by then-Governor Bush) with the now President Bush’s outspoken support of Terri Schiavo and his statement that, “When in doubt…err on the side of life.” The article, and the Witherspoon website in general, supported by your comments, appear to posit a contradiction if not a hypocracy in this comparison. Frankly, I don’t see it. Hudson and Nikolouzos (also spelled Nikolous in the article) were both on life support ventilators which were doing all of their breathing for them. Their bodies, due to injury and birth defects, were unable to breathe on their own and their was a clear medical consensus that neither would ever be able to do so. When the decision to discontinue this life support was made, their respective families were given 10 days to locate another facility that would concur with their wishes and continue them on life support (a fact omitted in the CJR article, by the way). No facility could be found that would provide this care for them in their condition. So, even against the families’ wishes, their life support was removed. Both died very quickly.

Although there are many ethical and moral issues involved in these cases they are light years removed from Terri Schiavo’s situation. She is not on any form of life support (a feeding tube is not ordinarily considered to be life support…only at the end stages of a terminal illness is it considered to be life support and hence, appropriate to be discontinued). Her body is physically functioning normally (she even has her monthly “period” which requires pain medication…although it has been said that she is not able to experience pain? Hmmmm….). There is no medical consensus on her mental status (ie. whether she is in a permanent vegetative condition, a persistent vegetative condition or something even less than that. Note that the fact that her mental status has been legally determined by a court ruling does not necessarily prove the existence of a definitive medical diagnosis). Lastly, there are dozens if not hundreds of medical facilities which would be willing to continue to provide care for Terri. Not only that, but her parents and family have offered to provide care for her in their own home…something routinely done in thousands of homes across our country every day.

With the two people in Texas, when their ventilators were disconnected they died, because they were not able to live without it.

With Terri, her life relies only on the same food and water that you and I require to sustain our own lives. If food and water were to be withheld from you and me, we would die. The same is true for Terri. She is not terminally ill. She is not dying. The only way to get her to die is to kill her in some way or other. The method of choice requested by her husband and approved by Judge Greer is starvation. Without intervention, Terri would live. With the Texas pair, without intervention they died.

To compare these cases as being comparable is to stretch logic well past the breaking point. Certainly there is grief and death and controversy in each of these situations. But that does not make them morally, ethically, medically or legally comparable.

I conclude by quoting the Columbia Journalism Review where it admits, ‘The cases are different…” For you to suggest or imply that they are not different is both misleading and dishonest.

Sincerely Yours In Christ,

Jim Tweedie

jtweedie@hawaii.rr.com

 

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Some blogs worth visiting

PVJ's Facebook page

Mitch Trigger, PVJ's Secretary/Communicator, has created a Facebook page where Witherspoon members and others can gather to exchange news and views. Mitch and a few others have posted bits of news, both personal and organizational. But there’s room for more!

You can post your own news and views, or initiate a conversation about a topic of interest to you.

 

Voices of Sophia blog

Heather Reichgott, who has created this new blog for Voices of Sophia, introduces it:

After fifteen years of scholarship and activism, Voices of Sophia presents a blog. Here, we present the voices of feminist theologians of all stripes: scholars, clergy, students, exiles, missionaries, workers, thinkers, artists, lovers and devotees, from many parts of the world, all children of the God in whose image women are made. .... This blog seeks to glorify God through prayer, work, art, and intellectual reflection. Through articles and ensuing discussion we hope to become an active and thoughtful community.

 

John Harris’ Summit to Shore blogspot

Theological and philosophical reflections on everything between summit to shore, including kayaking, climbing, religion, spirituality, philosophy, theology, politics, culture, travel, The Presbyterian Church (U.S.A.), New York City and the Queens neighborhood of Ridgewood by a progressive New York City Presbyterian Pastor. John is a former member of the Witherspoon board, and is designated pastor of North Presbyterian Church in Flushing, NY.

 

John Shuck’s Shuck and Jive

A Presbyterian minister, currently serving as pastor of First Presbyterian Church of Elizabethton, Tenn., blogs about spirituality, culture, religion (both organized and disorganized), life, evolution, literature, Jesus, and lightening up.

 

Got more blogs to recommend?

Please send a note, and we'll see what we can do!

 

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